Angry Birds

This is what happens when we allow angry bird apps on his iPad.  At least he is being creative!

Karl Birthday

For Karl's Birthday, his Grandpa took him fishing.  He was super excited and became "Monkey boy" on his dad!

 And then he climbed in with Grandma and Grandpa and left with no cake or anything.  I didn't see him for 2 days

Back to Business

Hyrum loves helping in the kitchen.  Found him to be pretty good at grating food

Post op Day #2

I'm not sure where post op day 1 ended and post op day 2 began. As we put him to bed, I discovered that he had leaked poo all down his leg into his sock, all over the sheet covering his play mat and of course because I didn't discover this until he was in bed...so all his bedding now needed changing. So a "spit shower" later with clean sheets we were ready for bed. He slept good and hard. 

His IV kept beeping "downstream occlusion" so we finally adjusted his hand with stuffed animals. Then we learned that when he sleeps on his back his heart rate slows to 58, so we adjusted the monitors to accommodate that.

Then at about 3 or 4 the aide came in for vitals to find the bed soaking wet!  As we got Hyrum off the bed, we discoverd his IV unconnected. So not all the wet came from Hyrum. But he got another wash down, clean pjs, and clean bedding! The nice part was the nurse unhooked his IV. We slept great until 7 when the nurses came in with shift report. His IV proved to be too tired to work any more. But he wouldn't let anyone touch him, so before he could be stopped or slowed down, Hyrum ripped off the tape and IV all in one motion. Afterwards Hyrum wanted his iPad and real clothes on.

Hyrum has done really well for the rest of the day. He has had more chocolate milk today not to mention a couple of dounuts, Mac and cheese and milk shakes.

We are going to need to do an extra flush just to get rid of all that processed sugar!  But we are down to taking only ibuprofen. We cleaned up his surgical site and We exchanged his bandages for new ones.

He handle the flush amazingly well once we convinced him to let us hook him up.

 Everything is looking really good and like we get to go home! He was super excited to ride in a wheel chair. 

But even happier to be in the car with his brother. 

And big brother was so happy to have him home that he let Hyrum play with his leggos well into the evening

Overall a very successful day!

Post op day #1

Our day started early when the nurse thought he should pee at 6 am. Afterwards he started to walk out the door. I asked him where he was going he said "to the play room". I told him the play room didn't open until 9 am. Finally got him settled back in bed and asleep. Then the residents came in at 7 to check on him. At this point he was awake and ready to go. I finally convinced him to wait for the nurses. So he begged for his iPad.

He played for a while. We got the nurses to hurry the order up for his clear liquids. His first choice of the day was a Popsicle. 

He loved that, but little did I know he was watching the time. And as soon as 9 am rolled around, he was outta there. 

He wanted to be in the play room. 

He proceeded to show the volunteer how to play with trains!

Pretty soon he got tired of trains and made his way to the wii. 

And the Xbox. 

And the wii again. In between, the nurse calls into the play room and we go back for meds and antibiotics. But John came down long enough for me to get lunch, adult conversation (not all with just him), and most importantly a Shower!

About 5 pm, we finally got a movie and laid down for the first time. 

But it lasted only that long and we were back in the play room by 6:15. He has decided that he could stay here forever! After the movie I has a bit of inspiration and we tried chicken broth. 

He loved it so much that we got even more chicken broth 

He took one cup with him and we went to find me some real food. The hospital has a "family room" with a fully stocked kitchen for anyone to use. This has been a huge help for us. So I found something he would not want to eat and so I hate the hottest Chinese food that I have ever eaten. What I thought was red bell peppers was really hot red peppers! Yup he had no desire to join me!  When we got back to the room they told us that while we were gone the residents had advanced his diet to a full liquid. This means

Chocolate milk after 2 he finally covered his head and off to sleep for the night. 

Well after I unburied him that is!

Post surgery afternoon

And then he woke up about 5 pm. His brother and sister came for dinner. Dad stayed, while I took the kids to the new(to us) family room that has a stocked kitchen. John and I traded places, but Hyrum wanted to go find them and join them. I distracted him with the "toy room" across the hall. 

He of course found the trains. 

And then he found the wii, and Karl decided to come join him. 

But soon got bored, so he found the cars. The toy room closed at 8:30, so we went back to his room and asked about a mat. 

He played until I tucked him into bed at 9:30 pm. Overall I would say, it's been a great day!

Post surgery

Hyrum went to surgery at 10:09 am

10:45 am. They are trying morphine again. So far so good, but we are still in surgery.

12:04 pm Hyrum did very well in surgery. There was a lot of scar tissue that Dr Rollins had to work around, but he was successful in being able to do it all lapriscopically. 

12:30 we got to see how Hyrum was fairing.

He was found to be doing well. He was using the blow by for oxygen. Was awake enough to know mom and dad was by his side...

And to say yes when his Dad asked if he could rub the feet!

He has been pretty protective of his tummy even when out of it.

When we got to his room, he was super hot. We asked if we could take a picture of his tummy. At first he wasn't so sure...

But then he finally relented.

Afterward, he became upset that he was naked...

So we got him dressed! And he promptly fell asleep. Hasn't really needed the blow by since, but the night is young. And the pain meds are working!

Let's just go and get it over with Hyrum's pre surgery

This morning we woke Hyrum up in hopes to give him one last drink before the "don't drink anything" point. His response was "I don't want anything, let's just get this over with"

Cuddles with big sister the night before Surgery.

Good back rubs. 

This morning he was cuddle up on the couch "ready to get this over with."

Big sister has to get one more bit of teasing in before he leaves for the hospital. 

Gets some good hugs from big brother. 

Questions he asked on the way to the hospital:

How long will we live there?

When will I get to eat?

Do they have to poke my arm?

Can I have a cheese stick afterwards?

Once we got here, he was just fine because...

They have Thomas the Train!

We got changed out, only to discover...

XBox with Minecraft!

And when he did head off, they put him in a wagon, gave him an iPad and he proceeded to play...

Minecraft(of course)! See ya later alligator!

Hyrum left for surgery at 10 am August 6, 2014