As of this past Tuesday Sept 9 we are tubeless. Hyrum did not want it out, did not understand that it would not hurt to come out. So 2 nurses, John and myself held him down while the surgeon snipped the stitch holding the tube in place and took out the tube. He was shocked when it came out. We then talked to him, because the doctor, John and I needed to insert the tube at least once each. So back to holding him down for the doctor. Once that was done, he was semi cooperative for John and very cooperative for me. Since then he has loved everything about his Malone. I can see it in his eye, I'm pretty sure that within the month he will not let us insert the tube. This time, he will be doing it himself. If any child could have a motto, his would be "I do it myself"
The one above was before we used some adhesive remover on his tummy. The one below is after he is all cleaned up!
We were told that the redness would go down and we would be left with a normal looking belly button. At this point, I'm just happy that everything is going smoothly and he seems to adjusted very well to the changes in his bowel management!
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