Tuesday, September 23, 2014

Flowbee Hair cutting

After Hyrum's surgery, he refused to let me cut his hair. He was turning extremely shaggy as it had been awhile before surgery also.  I had begged for a few weeks to cut it, but got the same response "no I'm fine".  I finally told him, that I wasn't fine with the mop on his head and we needed to cut his hair. He broke down in tears and told me that he was afraid that the hair would go into his belly button.  I got one of those Ah Ha moments.  Spoke about it with John, and he looked online.  I had never heard of the flowbees until afterward.  Here I was thinking it was this new and cool thing, when half the people at work knew what I was talking about.

He wouldn't let us cut his hair until he could see how it worked, so John offered up to be the ginny pig.  Then it was Hyrum's turn...not so happy still.



But he finally calmed down and got his hair cut!

Saturday, September 13, 2014

Roasting Dilema's

One of our favorite summer activities is roasting hotdogs and marshmallows over a fire.  This round, John was trying to burn a stump from a tree we had torn down a few years ago.
 Karl & Sarah were trying to lay flat to beat the heat.

 Rachel didn't care, she figured burn it and eat it.
 Hyrum though, got a bit creative with beating the heat.


 He found a mask to wear!

But he loves his marshmallows!

And the tube is out!

As of this past Tuesday Sept 9 we are tubeless. Hyrum did not want it out, did not understand that it would not hurt to come out. So 2 nurses, John and myself held him down while the surgeon snipped the stitch holding the tube in place and took out the tube. He was shocked when it came out. We then talked to him, because the doctor, John and I needed to insert the tube at least once each. So back to holding him down for the doctor. Once that was done, he was semi cooperative for John and very cooperative for me. Since then he has loved everything about his Malone. I can see it in his eye, I'm pretty sure that within the month he will not let us insert the tube. This time, he will be doing it himself. If any child could have a motto, his would be "I do it myself"
The one above was before we used some adhesive remover on his tummy. The one below is after he is all cleaned up!
We were told that the redness would go down and we would be left with a normal looking belly button. At this point, I'm just happy that everything is going smoothly and he seems to adjusted very well to the changes in his bowel management!