Overall, this was the most stressful time in Hyrum's life....including mine really...
Sunday, I am in church with our three older kids. John is at home with Hyrum. John knows that I'm in church (obviously) so when my phone rings with caller ID identifying him; I know something is wrong otherwise he would text me. I step out into the hall to take his call for him to start right in for me to "come home right now, something is wrong with Hyrum". I hung up immediately, run back into my meetings grab my things and the kids and head back out the door. John meets me at the garage door with Hyrum in his infant seat wrapped in a towel. While I drove Hyrum to the hospital, John called ahead to let them know I was coming and to be prepared. He then called his parents who met him at the hospital and took our three kids home so that John could stay with me and Hyrum. The following email(s) explain.
April 17, 2007 (Tuesday)
Hyrum was admitted back to the hospital Sunday Afternooon. He had what is called a prolapse (or in english) his intestine came out of his Stoma (pooping intestinal hole). He went into surgery that evening to put it back in him and was stitched closed to hold until monday. On Monday he was put into surgery again to have the doctor stitch the intestines together on the inside in hopes to hold it together and not have this happen again. They also redid the stoma and mucus fiscula and moved it up the intestine to give less pull to come out. This surgery was about 3 hours long. Hyrum was having trouble breathing so they didn't give him his full dose of pain medication. He woke up screaming and he prolapsed out of his mucus fiscula (lower intestine hole). They took him back into surgery again to tack the lower intestine to the outer lining of his abdomen with a button (I haven't actually seen this yet but this is how the doctor described it and drew on his picture for me). After receiving 3 doses of morphine, his body could not take the effects and he went into shock and quit breathing. This happened about midnight Monday night, Tuesday morning. He was stabilized and moved to ICU. He did not stabilize through the night and is still in ICU.
After receiving two full nights of no sleep. My wonderful sister-in-law Kristy came to the hospital and sent me home.
I am told that he is stabilizing more this afternoon while I am gone. Tomorrow if he continues to do well he will be allowed to eat. With the midnight episode I am not sure when he will be sent home, but he is on a different pain medication that does better with his system.
After receiving two full nights of no sleep. My wonderful sister-in-law Kristy came to the hospital and sent me home.
I am told that he is stabilizing more this afternoon while I am gone. Tomorrow if he continues to do well he will be allowed to eat. With the midnight episode I am not sure when he will be sent home, but he is on a different pain medication that does better with his system.
Jennifer's mom is not able to help as she has a nasty cold running through her house and I will not allow anybody who lives with anybody that is sick come and help at the house or hospital. So she arranges other people to come and give relief so I can sleep. If Hyrum is moved back to the
regular infant unit they have a place for me to sleep as long as the "co-sleeper" doesn't move in in the middle of the night or need a night light to sleep.(both happened on Sunday night and the beginning of Monday night).
Again thanks for your prayers and support. Sorry this is quick, but I just wanted to let all know that didn't already know how upside down life can change in a minute of time.
regular infant unit they have a place for me to sleep as long as the "co-sleeper" doesn't move in in the middle of the night or need a night light to sleep.(both happened on Sunday night and the beginning of Monday night).
Again thanks for your prayers and support. Sorry this is quick, but I just wanted to let all know that didn't already know how upside down life can change in a minute of time.
Wednesday morning, Hyrum woke up Throwing Up bile. After many tests, it was decided that Hyrum's intestine had somehow gotten kinked during his last surgery. In hopes to find this kink, Hyrum was cut from the top of his stomach to the bottom. In doing so, they also hoped to find the end of his intestine as this was still an unknown at this point. What they found was one of his muscles around his intestines had herniated and his intestine had gotten stuck inside. What they did not find was the end of his intestines as his groin area was still very swollen.
April 19, 2007 (Thursday)
Hyrum was still not doing very well. I cut and paste this next part from a dear friend of mine (and also my Relief Society President at the time). She has a blog for her photography, and posted the next words and pictures. She came on Thursday to take pictures.
From Amy Springer’s Blog
Answered Prayers
I pray often. Sometimes out loud, sometimes a whisper prayer. At times, a silent prayer. And today, all of the above. Sometimes, it is a simple prayer in my heart. When I have a deep concern for someone I find myself alternating between being focussed and distracted--going through a gammut of feelings and emotions: hope, concern, gratitude, joy, relief, sadness, love--then I must accomplish a task and for a moment my silent prayer must wait.
Today I could not stop thinking about this handsome little baby. At five weeks old, and he has spent all but two weeks in the hospital. For the past couple of days he has been the focus of my prayers, along with many others who are truly rallying around his family. He is the son of a friend in the neighborhood, and I have been humbled by just how many people want to reach out and help in some way. I know he is in the thoughts and prayers of many.
So tonight, I made arrangements to go and visit baby H. & his mom at the hospital--camera in tow (of course). I felt that photographing him today was one of the best things I could do (second to praying for him) . . . here are a few photos I'd like to share with his mother's permission:
{proof that prayers are answered: baby H. resting peacefully tonight.}
{I am so inspired by this determined little guy- barely older than a month and has already undergone 6 or 7 surgeries. He keeps on going, despite setbacks and emergency operations and more surgeries in the future, he still keeps on going.}
{I think I know where H. gets a good dose of his resillience from . . . his mama. As I looked through the photos from tonight, her happy countenance really struck me. She still finds joy, even through all she has been through this week alone (her baby had 4 surgeries this week!) J- your example means a great deal to me.}
To baby H:
{Hold on kiddo. You'll get through this. You'll be stronger than ever. Miracles do happen, and they have happened for you. Miracles will continue to happen. Prayers have been answered, and they have been answered for you. We pray for you.}
* Today was another day that reminded me why I am a portrait photographer-there is so much love and human emotion out there, just waiting to be captured through the lens and into the heart.
Please say a little prayer for baby H.
I pray often. Sometimes out loud, sometimes a whisper prayer. At times, a silent prayer. And today, all of the above. Sometimes, it is a simple prayer in my heart. When I have a deep concern for someone I find myself alternating between being focussed and distracted--going through a gammut of feelings and emotions: hope, concern, gratitude, joy, relief, sadness, love--then I must accomplish a task and for a moment my silent prayer must wait.
Today I could not stop thinking about this handsome little baby. At five weeks old, and he has spent all but two weeks in the hospital. For the past couple of days he has been the focus of my prayers, along with many others who are truly rallying around his family. He is the son of a friend in the neighborhood, and I have been humbled by just how many people want to reach out and help in some way. I know he is in the thoughts and prayers of many.
So tonight, I made arrangements to go and visit baby H. & his mom at the hospital--camera in tow (of course). I felt that photographing him today was one of the best things I could do (second to praying for him) . . . here are a few photos I'd like to share with his mother's permission:
{proof that prayers are answered: baby H. resting peacefully tonight.}
{I am so inspired by this determined little guy- barely older than a month and has already undergone 6 or 7 surgeries. He keeps on going, despite setbacks and emergency operations and more surgeries in the future, he still keeps on going.}
{I think I know where H. gets a good dose of his resillience from . . . his mama. As I looked through the photos from tonight, her happy countenance really struck me. She still finds joy, even through all she has been through this week alone (her baby had 4 surgeries this week!) J- your example means a great deal to me.}
To baby H:{Hold on kiddo. You'll get through this. You'll be stronger than ever. Miracles do happen, and they have happened for you. Miracles will continue to happen. Prayers have been answered, and they have been answered for you. We pray for you.}
* Today was another day that reminded me why I am a portrait photographer-there is so much love and human emotion out there, just waiting to be captured through the lens and into the heart.Please say a little prayer for baby H.
Thank you Amy Springer!
As I went through my notes, I realized that this next part is not printed anywhere, but needs to be printed. How do I put this into words. We were told Sunday that the Dr.'s were worried about Hyrum. He seemed to have lost his will to survive. And they were not sure that he would make it home. We called both sets of Grandparents and gave our son his Name and Blessing thru the Holy Melchizedek Priesthood. John gave our son the most beautiful blessing...and the result of this blessing is shown in this next email.
April 25, 2007 (Wednesday)
Well today is Wednesday. Yesterday I decided that I had to make a choice. I could stay in the hospital until Hyrum breastfead(which could take forever) or I could give him a bottle and go home sooner. So, I took the shorter route and gave him a bottle. Today we are home! He took to the bottle and drank very heartly. Shortly after his first bottle, the surgeon came in and was told what happened. He laughed so hard. He was glad that he was not the only person that Hyrum was giving the run around.
So this morning the nurse took his picc line out of his arm. We got the needed supplies for his stoma to go home with. And then we got the lovely yellow paper saying WE ARE FREE TO GO HOME.
The kids are very excited and are already fighting over Hyrum. It is wonderful. Thank you for all the wonderful prayers. They have made a wonderful difference in our son.
So Sunday he received a Blessing, Monday he started showing signs of wanting to eat, Tuesday we gave Hyrum a bottle, and Wednesday we came home. Nothing anyone can tell me will tell me that it was not that Blessing given by his Father that put Hyrum home three days later!
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